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...earlier recognition of key symptoms of NPC is critical in order to achieve an earlier diagnosis for patients...

Currently, the ultra-rare genetic condition, Niemann-Pick disease type C (NPC), takes on average five years to diagnose. This is five years of emotional turmoil and confusion for those families affected ... five years without access to the treatment and support they so desperately need. This needs to change. Think Again. Think NPC

Think NPC - an international effort

Think Again. Think NPC is a groundbreaking awareness campaign led by the International Niemann-Pick Disease Alliance (INPDA), an umbrella group of non-profit Niemann-Pick disease patient support organisations from across the world.

The campaign aims to reduce the time to diagnosis of NPC, with particular regard to healthcare professionals who may be unfamiliar with the condition and therefore may struggle to recognise the key signs and symptoms of the disease. By increasing awareness, and encouraging those people to Think Again. Think NPC we will help patients by speeding up diagnosis and subsequent access to treatment and support.

Do you have more questions than answers? Try our FAQs page.

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